I have been a fan of Paul Reubens aka Pee-Wee Herman for as long as I can remember. I loved Pee-wee’s Playhouse and through the years I have had opportunities to meet Mr. Reubens, but something is always getting in the way. But not today. Nope, I was unsure how I would do getting to…
12 years ago today, I was diagnosed with MS at UCLA Medical Center. The chief resident said the five words that would forever change my life, at 8:25am PST: “I’m sorry, you have MS.” I remember he looked rather pleased with himself. A brief disagreement between doctor and patient ensued, but I knew. I knew…
While Eleanor and I came up short in our quest to drive cross country, I do not consider this a failure in any way. It is a fact that I could finish this trip if I were traveling by myself. However, I am not, and there is no reasonable path forward for Eleanor and I…
As anybody who knows me or who has been following this journey knows, Eleanor has been my constant companion and helper for 11 years. I wouldn’t dream of making this trip, journey, without her. She has been a real trooper these past seven days. However, she has, of late, been struggling a bit. She…
The drive from Amarillo to Roswell was long, but not unpleasant. I took the four lane highway, and it was scenic. Well, Ok, so a lot of the time the scenery was of flat land that went on forever. But it beat the scenery driving through Arkansas. And part of Oklahoma. Just remember if you…
Short day of driving today, three hours. My body hurts. A lot. Mainly my lower back. Oh well. From what I can tell so far, Oklahoma doesn’t look much different than Arkansas. That may change tomorrow. Or not. Today has been frustrating. I seriously wonder why I felt the need to attempt this. I am…
And on the third day, I drove for a very long time (OK, so it was only four hours, but it felt like years) from Lake Horn, MS/Memphis, to Fort Smith, Arkansas. What I learned today? Four hours is just about my maximum driving time in my current state. The pain in my right foot…
So, on the second day, I had a mild (?) panic attack today. Actually, it was this evening. My right leg started hurting as i drove to dinner. This made me start to think about the long days of driving coming up. I wondered if I can’t make it out of Tennessee without being in…
Not only is today the day I start my MS road trip, it’s also World MS Day. The first World MS Day was initiated in 2009, by the MS International Federation, as a way to bring awareness to MS. Each year, a different theme is picked. This year’s theme is #LifeWithMS. Well, it is no…
Ok, I get it, really, I do. People with MS have some serious mobility challenges, or can, sometimes without much notice. And yes, I have broken two bones this year, one of which required surgery, and yeah, that has caused my suspect balance to be even worse. However, I am perfectly capable of driving across…
