Still invisible….

Thinking of my friends, Anne Luchessi Spina and her husband Jim today. Both have invisible, pre-existing medical conditions. Anna has Arnold Chiari Malformation (which I also have a very minor case of), Spiro -something I can’t say, let alone spell, and her husband has had a kidney transplant. Jim is in today for I believe…

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Next Road trip

OK, since I have proven that I am capable of doing a road trip, I am planning my next one. I have always wanted to see the Northeast during the fall, so that is what I am thinking. Obviously a much shorter trip, but, I could get a few more states off my list. Namely…

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Healthcare Thoughts

Well, Trump (or as Evangelicals call him, Platform. You know, so they could feel good about voting for a pussy grabbing, Russian colluding (Benghazi! Emails!), disable persons mocking, unsecured Android phone using, formerly pro-choice, Hillary supporting man, under the guise of keeping some theoretical future child safe versus the children who are already here, because…

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Post Trip Health update

So, while in LA I managed to get into a fight with a welcome mat. The welcome mat won. I suffered a chipped bone in my left ankle and a bad sprain. Go me. This necessitated another trip to see Dr. Anaconda, who was as charming as ever. Even after I told her I never…

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Self Care

So, after the cluster that was yesterday, I decided today was a day for self-care. What does that mean? I returned to the room, shut off all of the lights, turned the TV on, the air down, took a muscle relaxer and snuggled up in under my Wonder Woman throw. I dozed, I watched Dr.…

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Heat, heat and more heat

Typically in LA we have what you call June Gloom in, wait for it, the month of June. That means a very thick marine layer keeps temperatures in the 70’s. Very cool and quite enjoyable. Not this week. Nope. Nada. Un-huh. Today it was 98. Yesterday it was 95. Tomorrow? Supposed to be around 100.…

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1 Week Post Trip

Well, it has been one week since I ended the car postion of my trip and boarded Amtrack for the last leg of my trip. It was to be a 16 hour, overnight, train ride from Albuquerque, New Mexico to LA. Supposed to be. However, due to a hail storm in Las Vegas, NM, the…

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June 7, 2005

12 years ago today, I was diagnosed with MS at UCLA Medical Center. The chief resident said the five words that would forever change my life, at 8:25am PST: “I’m sorry, you have MS.” I remember he looked rather pleased with himself. A brief disagreement between doctor and patient ensued, but I knew. I knew…

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End Of The Line

While Eleanor and I came up short in our quest to drive cross country, I do not consider this a failure in any way. It is a fact that I could finish this trip if I were traveling by myself. However, I am not, and there is no reasonable path forward for Eleanor and I…

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